Her parents believed she could only live For a few months and eventually die, but that was not the case because she lived for a few years. At age three she had natural kidney failure, she had to undergo surgery to replace it and in 2007 a second kidney transplant was successful. She eventually learned how to swim with her conjoined legs, she remained hopeful about her disability and often joked about living as a ” mermaid girl”.

Her family were debating surgery because of risk involved as it supposedly would improve her quality of life. Many kids with this condition receive surgery when they are young, but Shiloh was already 8 years old and she had decided against surgery because she didn’t want to change who she was. She was the the only one out of three survivors of sirenomelia without surgery for separation of the Conjoined legs.

She underwent several surgeries and this led to her death while recovering, but she had lived her life happily despite her challenges as seen in her TLC reality documentary in ”Extraordinary people: Mermaid Girl”.